Alessandria Biobank and the world of biobanking: in search of knowledge
https://doi.org/10.4081/wpph.2023.9570
Accepted: 15 March 2023
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A biobank is a service for the collection, processing, storage and distribution of biological samples, which implies a quality system and management of the rights of the people involved. The activities carried out within a biobank are aimed at supporting biomedical research and the development of personalized medicine; they allow, therefore, to identify biomarkers associated with some types of pathologies, define a prognosis and create a personalized treatment plan. Given the importance of biobanks, it is essential to try to scientifically quantify the thoughts and opinions of the population on this topic. It is even more important that the population itself knows its potential and possibility of participation through the donation of biological material and associated data, regulated by ethical-legal systems, necessary for the protection of samples and data. The existence of biobanks depends on how many people are willing to donate their biological material for research purposes; it is, therefore, essential that their existence and the activities that this service offers to public health are known. This pilot study, based on an observational process, aims to investigate the degree of knowledge about the world of biobanking and the awareness of the existence and work of the Alessandria Biobank, through the design and administration of a questionnaire at the Blood Donors Center and the Gardella Polyclinic of the A.O. SS. Antonio e Biagio e Cesare Arrigo.
Council of Europe. Recommendation N. R(94) of the Committee of Ministers to member states on human tissue bank. 1994. Available from: https://rm.coe.int/09000016804dd7ee
Abbott A. Sweden sets ethical standards for use of genetics biobanks. Nature.1999;400:3. DOI: https://doi.org/10.1038/21720
Abdelhafiz A. S., Sultan E. A., Ziady H. H., et al. What Egyptians think. Knowledge, attitude and opinion of Egyptian patients towards biobanking issues. BMC. 2019;20:57. DOI: https://doi.org/10.1186/s12910-019-0394-6
Porteri C., Pasqualetti P., Togni E., Parker M. Public's attitudes on participation in a biobank for research: an Italian survey. BMC Medical Ethics. 2014;15:81. DOI: https://doi.org/10.1186/1472-6939-15-81
Antonova N, Eritsyan K. It is not a big deal: a qualitative study of clinical biobank donation experience and motives. BMC Medical Ethics. 2022;23:7. DOI: https://doi.org/10.1186/s12910-022-00743-6
Hoeyer K. The ethics of research biobanking: a critical review of the literature. Biotechnol Genet Eng Rev. 2008;25:429-52. DOI: https://doi.org/10.5661/bger-25-429
Critchley C., Wiersma M., Lipworth W., et al. Examining diversity in public willingness in offshore in human biobanking: an Australian mixed method study. Public Underst Sci. 2020;29:757-69. DOI: https://doi.org/10.1177/0963662520948034
Lhousni S., Daoudi F., Belmokhtar I., et al. Patient’s knowledge and attitude toward biobanks in Eastern Morocco. Biopreserv Biobank. 2020;18:189-95. DOI: https://doi.org/10.1089/bio.2019.0047
Snell K., Tarkkala H. Questioning the rhetoric of a ‘willing population’ in Finnish biobanking. Life Sci Soc Policy. 2020;15:4. DOI: https://doi.org/10.1186/s40504-019-0094-5
Kauffman D. J., Murphy-Bollinger J., Scott J., Hudson K. L.. Public opinion about the importance of privacy in Biobank Research. Am J Hum Genet. 2009;85:643-54. DOI: https://doi.org/10.1016/j.ajhg.2009.10.002
Tozzo P., Fassina A., Caenazzo L. Young people’s awareness on biobanking and DNA profiling: results of a questionnaire administered to Italian university students. Life Sci Soc Policy. 2017;13:9. DOI: https://doi.org/10.1186/s40504-017-0055-9
Toccaceli V., Fagnani C., Nisticò L., et al. Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study. BMC Medical Ethics. 2009;10:4. DOI: https://doi.org/10.1186/1472-6939-10-4
Paskal W., Paskal A. M., Dębski T., et al. Aspects of Modern Biobank Activity – Comprehensive Review. Pathol Oncol Res. 2018;24:771-85. DOI: https://doi.org/10.1007/s12253-018-0418-4
Vora T., Thacker N. Impacts of a Biobank: Bridging the gap in traslational cancer medicine. Indian J Med Paediatr Oncol. 2015;36:17-23. DOI: https://doi.org/10.4103/0971-5851.151773
Bolt S., Venbrux E., Eisinga R., et al. Motivation for body donation to science: more than an altruistic act. 2010;192:70-4. DOI: https://doi.org/10.1016/j.aanat.2010.02.002
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NoneCopyright (c) 2023 Valentina Amore, Roberta Libener, Giulia Oliveri, Paolo Bonvicini, Antonio Maconi
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